Only Love

Put a little bit more of Christ's love into your day...

I love someone rare and beautiful

....well actually a lot of someones(:
School starts tomorrow for me and so i wanted to write this now because I know i won"t have time to on Friday.
August 16th...Skylar Marie Jones lost her battle to SMA. It was the first SMA angle that i experienced. I knew that we all had a short time here on this earth and i also knew that the SMA fighters had a shorter time, but it never really clicked to me until Skylar's death that we are fighting a battle with a time limit for each of these beautiful kids...a time that we don't know how much more we have to help them fight.
Lots of people say when an SMA baby dies that they lost there battle(i do too...sometimes) but my perspective has changed since 2011..Skylar lost her battle here but she also won her battle. She is cured now!

When Skylar died it hit me really hard...i was mad at God for taking her away. Okay I was furious. Im not proud of it at all. Because I am just a little girl who He made and he will take away. He made Skylar for a purpose on this earth and she fulfilled it.
I still ache because i felt so so so close to her. I loved her and I still do very much. She taught me so much, when she was here with us and when she went home to be with our Father. There are days and moments when i feel like i can feel her smiling down on me...through a little sprinkle of rain or the glorious moment of watching a beautiful butterfly fly by you. Through all these little things I remember the purpose that God has for each and everyone of us. And I think of those who completed their purpose and my heart has peace...

Skylar Marie...
Keep flying high sweet angle. You will always live on in my heart.
Love you



My favorite picture of the butterfly<3

SMA Awareness Month

August is here, which means back to school shopping and getting everything ready for us kids as we head off to school for a new year. But, August is also something bigger than getting new pens and pencils...its SMA awareness month.
Getting the word out about anything is difficult and taxing,but there are so many parents out there who are giving it everything they have to get the word out about their sweet child and all the others who are struggling with it too. They have the strength to keep fighting for their baby as they fight to keep going too. They might get discouraged but they take one look at their child and its all worth it.

Here are some of those devoted parents...













They will never give up and they will always keep fighting because they know that it is so worth it every tear they cry,every time they sweat. no matter how many times they fall they will always get back up because they love and love and love...spread the word, get it out there,save lives...