Saturday, January 19, 2013

Having Hope

"Through all the storms in our life there will always come a rainbow."
                                                                         -Pastor Gerdt
My bible teacher is teaching my class about Genisis and we just got through Noah's flood. We were talking about the rainbow when he said the quote above and it stuck out to me. It was so perfect and it made me think. There are a lot of storms in our life but it takes strength and faith to fight through them and stay strong and continue to have hope. I continue to believe in His faithfulness and to have hope that He will someday cure SMA. I have days when I feel really down and just plain out depressed but there always seems to be a little light and a little hope. These days aren't fun but they always pass and there is always a rainbow. Sometimes it's a faint one that you have to look really hard for but none the less its there showing me that God is still walking right beside me, holding my hand and helping me along.
              It has been a really long time and a lot has happened since the last time i posted something. My siblings and friend Cheyene ran in the Got Hope?SMA Walk n Roll and it was AMAZING(: we had so much fun and I enjoyed being around people who understand what it's like to be effected by SMA. We got Jadon bugs on our faces and we got balloons made to wear like butterflies. I loved being surrounded by Families Of SMA and seeing all the kids playing together. It was a great experience and I can't wait to do it again next year.


For fun my family started climbing mountains together and we made it to the top of most of the ones we climbed. we climbed the twin sisters for Gwendolyn Strong's birthday and we did make it to the top.I took off my gsf bracelet and took this pic at the top...




On December 14 Gracyn Jaye was born into this world and Jadon is now a big brother. She is beautiful and so precious. Words fall short of describing the joy that I had when she was born. She is a gift from God and an amazing blessing. When Jadon was diagnosed with SMA I didn't understand what all SMA would do. My parents told me that Tony and Kristin probably would not have any more kids but than we got the news that they were going to have another baby. I prayed for a girl and yupp that's what they got(: I am so happy for their family and I can't wait to watch her grow up into a beautiful girl. Welcome into the world Gracyn, stay strong, live lovingly, dream endlessly,wish on stars,and Never Ever Give Up.

A good two2

Christmas came and with it love and dreams. My sister and I got Beb-e-ssential owl hats and they are really cool. We love them and love having the same hats that lots of the SMA kids have. This Christmas I thought a lot about what families who lost a child to SMA must feel like spending Christmas without their baby with them.   I want you guys to read this blog post by Skylar's mom it really made me think about not getting wrapped up in all the Christmas stuff but focusing number one on God and what he did for us and two on being so thankful for life. www.skylarmariejones.com

A family also needs prayers right now, Cooper has SMA and his daddy was in a car accident and died. I can't imagine what his mom is going through right now. How can you explain this? Our lives here are so short and none of us are promised another day. But it was so sudden and there was nothing they could do to save him. Please pray for them as they go through this horrible time. And before you do anything else take some time to tell those you love that you love them and make them feel loved because you never know what could happen in the next second. Leave nothing unfinished, make your dreams reality and make sure that if your life was to flash before your eyes that you wouldn't have any regrets.
"Leave nothing for tomorrow that can be done today"
                                                         -Abraham Lincoln

2013 is here and I hope that this is the year that we finally find a cure for SMA. I can't wait to see what all this year holds. I know that there will be trials and storms that will come and that we will dance in the rain and find a way to push on in life and that after each storm there will be a rainbow that will shine down on us and show us God's unending love.
                                                                                               -Danika