One More Time

Oh Lucy, ya make me smile. You light up my life! If you listen careful and watch it twice you can tell what shes saying. Shes talking about her favorite princes, so cute! The end is the funniest you'll understand the tittle once you watch the movie. So cute Lucy!
Danika

Never Give Up... And Never Forget!

This movie chocked me up i have seen Brielle's pictures before but i never dreamed to see her walking. Wow!

Thank you Lord for all you do.
Skylar's Birthday is coming up on the 19th i'm not looking forward to that day. She was so close to being one of those special kids who makes it to 2 years old.  I wonder if they celebrate Birthdays in heaven? Aww, I miss her so much! Please pray for Sky's parents as they too remember all the joy Skylar brought.
God Bless!
Danika

Crunch Coincidence

This summer my family went to Sea World in San Diego, CA. It was a lot of fun we went to shows and saw all sorts of animals. Well a few nights ago I was watching Gwendolyn on You Tube and saw that Gwendolyn had been to Sea world too. It wasn't a  huge shocker to see because Gwendolyn lives in Santa Barbra CA. So as I watched the movie it became obvious that me and Gwendolyn had met the same dolphin out of like 50 (okay so maybe I exaggerated a little:)  I was so happy and my parents thought I was a little crazy. The movie is really cute I hope you like it!
Danika

Happy Birthday Gwendolyn!

Wow! I can't believe that she is 4 years old all ready! It amazes me and makes me praise God for all this time that he has given to her on this earth. Our life here is like a vapor the bible tell us and that we will spend all of eternity with him if we believe and have saving faith. We're all going to die just for some of us it will be a little sooner. Gwendolyn wasn't supposed to live to be 2. So this is a huge accomplishment for her! I know I say it all the time ,but I am so proud of her !
Love ya G!!!!
Danika
http://www.gwendolynstrong.com/2011/10/miss-g-is-4.html

Praise God for Pre-school!

Miss G is going to school. I was shocked to see that post.How in the world? Only by the grace of God! It amazed me to see what God has done in her life. When Gwendolyn was in the hospital I had a gut feeling that we were going to loose her.I prayed for her and so did kids at my school,and God decided to answer  our prayers. Thank you Lord! Hope you have fun at school! Please continue to pray for a good recovery.
Danika    :)

This my cousin Jadon. I Love him so much the movie was made in honor of him and his B-day. That was June 25. I'm so proud of him. I love this move the picture and the lyrics. Yes, I am an extremely proud cousin!
I'm in love with the Bug!
Danika

Let's Go Miss G!!

Gwendolyn is  home! Hallelujah!  I'm so thankful to God I had that same prayer request everyday at School for God to heal Gwendolyn's body.  I was so excited to see that God had answered my prayers!   Thank you Lord!
Danika                                                                       Look at her lips there so red!!

No news is good news?

So,I'm really scared for Gwendolyn. I want to see that post that says were home,but it's just not coming. Please pray for her! On the brighter side of things Lucy got a power chair and is so cute in it. She drives it like a pro. Her movie says that she wants to drive up this tree it's so so soo cute! This is a must watch video!  Enjoy!
Danika
Please pray for Gwendolyn!

Praying for Gwendolyn

This amazing little girl was admitted to the PICU sometime today. She hadn't been feeling the best lately and I'm not really sure why her parents took her in,but it was a good thing that they did.  Her blood count was 5 and  I guess that's bad.  Gwendolyn had a blood transfusion and went through it amazingly. She really is A Super Girl!  Please pray for a good recovery.
Danika

Nora's special toys!

This is a cute video of Nora with some of her toys. She pushes a button and then her toy talks to her. She's so precious! A while ago we went to this park and there were a few people there. When it was time for a grandma and a little boy to go he started to cry and run away from his grandma. The grandma started to become a little irked with the little boy and yelled "Jadon you get back here" that made interested. She finally got Jadon in the car, but he was making Noah's flood look like a spring rain puddle. Later, when we got home my Dad was talking about this little boy.He said that Tony and Kristen (my cousin Jadon's parents) would love to have Jadon run away from them. That made me want to raise money for a cure even more. SMA stinks! Speaking of SMA stinking I miss Skylar.
Danika

Nora and Skylar

  This is Nora and Skylar. Nora is the red head and Skylar is  the other cute girl. Skylar lost her battle to SMA on August 16. I miss seeing her cute, cute face on her blog. SMA is cruel. Lots of questions flew through my mind when I heard that Skylar was dead. One was how could a loving God do this to me and to Skylar's family. I answered this later that day Skylar was in a better place with no tears, no pain,no sickness and most of all NO SMA! I miss you Skylar!
Danika

Nora and the song!

This song has really powerful lyrics. It means a lot to me I think it has a lot to do with SMA.This is of Nora at Easter time and when she was  much younger. She's so cute! She deserves a future!
Danika

So, I haven't been feeling the greatest just stuffed nose, nasty cough well you get the gist. I've been thinking a lot about that kids with SMA can't move and when they're sick they depend on their parents and nurse to care for them. They can't move to wipe their nose, they can't cough to get the tickle out of their throat. Ah, that's crazy!
Man, I love these kids.  I can't begin to think of the stress that would bring on everyone who helps them.
I love you Jadon!
Danika

What is SMA?

I just relized that I haven't told you what SMA is. So here you go: Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers.

SMA affects muscles throughout the body, although the proximal muscles (those closest to the trunk of one’s body - i.e. shoulders, hips, and back) are often most severely affected. Weakness in the legs is generally greater than in the arms. Sometimes feeding and swallowing can be affected. Involvement of respiratory muscles (muscles involved in breathing and coughing) can lead to an increased tendency for pneumonia and other lung problems. Sensation and the ability to feel are not affected. Intellectual activity is normal and it is often observed that patients with SMA are unusually bright and sociable. Patients are generally grouped into one of four categories. The determination of the type of SMA is based upon the physical milestones achieved. It is important to note that the course of the disease may be different for each child.

Thank you Goodens for this definition.

Danika

Nora

This precious girl has SMA type 1.She is the cutest red head ever! This movie kinda explains what SMA did to Nora. It's heart breaking to see what has to be done to keep her alive. Let's go modern science!
Danika

SMA Kiddos

When you look into the eyes of a kid with SMA, you discover that they are deserving of a cure. It's shocking how they talk with their eyes. I know that Jadon and Nora have the most stunning eyes ever, they're so pretty.
This little movie is of kids with SMA the Angels are kids who have earned their angel wings and now fly with their Creator.
Danika

Here's a movie about my cousin I love this song. When I'm lying in bed at night I listen to this song then pray for my bubba. I it makes me treasure life. And boy, do I love my beautiful cousin! I LOVE,LOVE,LOVE,the bug!!! I love you Jadon!
Danika

I don’t know if there is any easy way to start a blog. But, I guess I started this to help raise money for a cure for SMA. My beautiful cousin Jadon (Jadon's Hope Website) was diagnosed with SMA when he was very little. It was hard to cope with because I loved him and I want to see him grow up. He is now two years old and that is a huge deal for kids with SMA because only 10% of them live to see their second birthday. I have been following lots of kids with SMA including Skylar. SMA recently took Skylar’s life and I was filled with lots of emotions that are hard to explain. I cried my heart out that night and into the next day. I hope this blog will make it easier to overcome death by writing it out, and that it will get the word out about SMA. So Skylar this is for you!
Danika