The Bug is 3!

Jadon is three... a day doctors told us would never happen. And yet here we are celebrating a boy who has impacted so many lives. He is amazing,strong.courageous,and adorable.The Burks spent Jadon's big day in Minnesota with the SMA conference. He is getting so super big it feels like yesterday that i got to see him at his house when he was only one month old. He was sitting in a little boncey seat and i was sitting on the floor in front of him he kept spitting his pacifer out at me. Then i would get it and he would spit it back out. He touched my life and i love this little boy  big boy so much!
 
So...Jadon Thomas Burks.... Happy Birthday!!!!


The birthday boy, three tattoes for three years
 
Cartoon  Jadon...

Song and Surprise!!!

Praise you in this storm-Casting Crowns

First of all this song really helped me after Amanda died. It was the night that I found out I was crying and thinking about how horrible death is. Some nights I listen to K-love. I love their songs and that night I turned it on and as I prayed for comfort and for Amanda's parents this song came on I hadn't heard it in a while and didn't recognize the song at first. I consintrated on the words and found them comforting when it got to the praise you in this storm part and I lost it. There is a qoute that my great Aunt found and I fell in love with it (my cousin Jadon's blog has this qoute on there too) here it is:
                   " Life's not about waiting for a storm to pass it's about learning to dance in the rain." 
     
The song reminded me of this quote and that reminded me of Jadon and all the other kids. They aren't able to move but yet they are dancing in the rain. They don't let SMA get them down they still have fun and encourage so many peolpe. They are truley amazing and I love all of them very much.

Now for the surprise... Jadon is going to be a big brother! The baby is SMA free and should be coming into our world in December. They still don't know if it's a girl or a boy. I am so excited I can hardly stand it. Jadon is going to be the best big brother ever.  :)
Congratulations Burks family!

Happy Birthday Jack

    

Jack was born on this day last year and he was diagnosed with SMA type 1. In December SMA took him home. He would be one today. He is so super-duper cute and his eyes are stunningly beautiful. In a letter to him after he died his Mommy said this: "You are still here in our hearts, and go with us wherever,  if love could have saved you, you would ave lived forever." I love this quote; it is so true. SMA is evil and I hope and pray that someday we will be able to lift our eyes up to heaven and say "Thank you Lord... thank you." But until this day comes we remember the ones we have lost and think about where they are and Who they are with. They are happy and not in any pain. They can breath, walk, run, and laugh really loud. :) Most importantly they are SMA-free and they are with their Creator . So for now we thank God for the time we had with Jack and Amanda and Skylar and all the other little Angels .

God bless and Happy birthday Jack!  I love you!