School starts tomorrow for me and so i wanted to write this now because I know i won"t have time to on Friday.
August 16th...Skylar Marie Jones lost her battle to SMA. It was the first SMA angle that i experienced. I knew that we all had a short time here on this earth and i also knew that the SMA fighters had a shorter time, but it never really clicked to me until Skylar's death that we are fighting a battle with a time limit for each of these beautiful kids...a time that we don't know how much more we have to help them fight.
Lots of people say when an SMA baby dies that they lost there battle(i do too...sometimes) but my perspective has changed since 2011..Skylar lost her battle here but she also won her battle. She is cured now!
When Skylar died it hit me really hard...i was mad at God for taking her away. Okay I was furious. Im not proud of it at all. Because I am just a little girl who He made and he will take away. He made Skylar for a purpose on this earth and she fulfilled it.
I still ache because i felt so so so close to her. I loved her and I still do very much. She taught me so much, when she was here with us and when she went home to be with our Father. There are days and moments when i feel like i can feel her smiling down on me...through a little sprinkle of rain or the glorious moment of watching a beautiful butterfly fly by you. Through all these little things I remember the purpose that God has for each and everyone of us. And I think of those who completed their purpose and my heart has peace...
Skylar Marie...
Keep flying high sweet angle. You will always live on in my heart.
Love you
My favorite picture of the butterfly<3
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